RORY'S WAY

Life-Limiting Fetal Diagnoses: Empowering Parents With A Holistic And Viable Option

OUR MISSION

Supporting parents facing a life-limiting diagnosis for their baby. Empowering parents through the holistic and viable option of carrying their baby to term and caring for their baby as long as they are able.

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About Us

The Burke Family

Rory and I are blessed with five beautiful children.  In January of 2019, following my twenty-week checkup, our unborn son, Baby Rory was diagnosed with Trisomy 18- a life limiting condition.  We were offered the option of termination.  For us that wasn’t an option so we decided to carry him to term and care for our sick son no matter what the length of his life might be.  We wanted Baby Rory to write his own story and allow his life to unfold as it was designed.

Baby Rory was born June 12, 2019 and lived on earth for five precious days.  We were able to meet him, spend time with him, and bring him home with us.  His four sisters were able to hold him, give him his first bath and make lots of memories with their beloved brother until his gentle and natural death.  We were so fortunate to have had a few friends who with their personal experience, offered immeasurable love, guidance and support to us during our own personal journey.

Keara- Baby Rory's Mother

You just heard the worst news of your lives.  Now what? 

My husband, Rory and I want to provide you and your family with the same additional personalized support, love and guidance we received during this precious and emotional time.  Mothers, I wish to help empower you with your authentic femininity to embrace and submit to your maternal nature.  Fathers, we want to support you in exhibiting your masculinity of being the protectors of your children especially right now at their most vulnerable, being sick with their terminal illness.  

This balanced perspective of you as parents caring for your sick baby through the diagnosis and short life span aligns with nature and a Divine Power and will also allow you to grieve and heal properly. 

Services

  • Emotional and psychological support to parents after receiving an initial life-limiting diagnosis.
  • Walk with mothers and fathers on their journey through their baby’s pregnancy, birth, passing, and the bereavement period that follows.
  • Connect parents with perinatal hospice programs and palliative care teams.
  • Connect parents to appropriate community support
  • Support in the planning of your baby’s arrival and time with you.
  • Provide creative ideas for memorializing your child in thoughtful ways.
  • Assist in arranging Baptism, a photographer, funeral, and burial arrangements.
  • Help alleviate stress and anxiety during your journey so you can enjoy your precious time with your baby no matter how long that may be.
  • Share ideas for siblings with their brother or sister during the pregnancy and/or after birth.

Phone sessions with one of our experienced mothers/fathers

Bereavement/grief support

  • Phone sessions with one of our experienced mothers/fathers.

Assist with resources

  • Connect parents with perinatal hospice programs and palliative care teams.
  • Connect parents to appropriate community support

Provide a holistic approach towards parents and baby

  • Emotional and psychological support to parents after receiving an initial life-limiting diagnosis.
  • Walk with mothers and fathers on their journey through their baby’s pregnancy, birth, passing, and the bereavement period that follows.

Assist with the customized birth plan for your baby

  • Support in the planning of your baby’s arrival and time with you.
  • Provide creative ideas for memorializing your child in thoughtful ways.
  • Assist in arranging Baptism, a photographer, funeral, and burial arrangements.
  • Help alleviate stress and anxiety during your journey so you can enjoy your precious time with your baby no matter how long that may be.
  • Share ideas for siblings with their brother or sister during the pregnancy and/or after birth.

Personal Stories

The Story Of Mary Grace

By John and Molly Kurt October 31, 2017 Most children with anencephaly die shortly after birth. Tragically the vast majority of unborn babies who are diagnosed with anencephaly before birth die from abortion. Molly: I think it is easy to assume that abortion is the best answer because you take care of the problem which is a profound disability and you move on.

James Keller's Story

As we grow older, all of us look back and wonder of what impact their lives have made in history. I am not quite sure of having done much extraordinary. But I know that I have been given an extraordinary gift. I am the mother of James. I am the mother of a Saint. In 2011, my husband and I had been married for six years and were expecting our fourth child.

Our Angel Benjamin

My son Benjamin Michael was diagnosed with a rare condition called “Potter’s Syndrome “. When I was about 18 weeks pregnant, my ultrasound showed very little amniotic fluid. I was called back to the Maternal Fetal part of the hospital to have another ultrasound done that revealed to us that our son had never developed kidneys. The baby makes...

Lulu's Story

I have worn many different hats in my life: mom, wife, daughter, sister, friend, co-worker, volunteer. But one hat that I never imagined I would don is that of “angel mom”. I became an “angel mom” on the day that I learned I would have to say goodbye to my youngest daughter, Elizabeth ~ fondly known as “Lulu”.In December 2011, my husband Doug and...

WHY WOULD PARENTS CHOOSE THIS?

Sometimes parents have questions that arise-why? Why would mothers and fathers opt for this choice when there are other options presented? Parents choosing to love and protect their baby as long as they are able is worth something. Parents giving their baby a peaceful goodbye is worth something. Parents allowing their baby son or daughter to write their own story is worth something. Parents giving siblings the gift of meeting their baby brother or sister and making memories is worth something. Embracing the reality of our humanity that we are all going to die and often times this may include our precious babies is worth something.